I'm a mixture of emotions- I'm sad to say bye to my Mum, the round the clock care and all my Surrey family and friends but I am also really excited to see my Carl, his family and also to get back to my own flat. (Carl this is your pre warning so you can spruce the place! ;) )
My life has changed in many ways and I'll never quite be the same as 'Gemma Pre Brain Tumour' but also we don't know how long I've been living with Bertie so in some ways maybe this is now the start of the 'New, Bertie-less Gemma'!! And she might be a real star!
So I'd like to say thanks to my Mum and everyone in Surrey who looked after me. Thank you to all my friends who visited, txted, sent cards and all sorts- loves ya Xx
I bought Mum some flowers and a little card as pictured to say thank you today! Xx
I'll be back to stay in Surrey in 3 weeks for my Neurology appointment where we will be adjusting my anti seizure meds as I'm currently cross tapering on to a new drug called Keppra (and coming off the Phenotoyin).
These are the drugs I will need to stay on for life as I am technically in remission (although there is no actual 100% cure for the intrinsic tumour as I have mentioned before) and removal of brain tumours can also cause seizures so we have to take precautions just in case. I also want to prevent seizures too as I am keen to drive again one day.
I will see a Speech and Language Therapy Team either this side of the year or early next year and as mentioned I will be MRI scanned in the new year so that when I meet with my Neurosurgeon he can give us an exact on how much of the tumour was removed as the MRI I had before I left hospital showed around 95% but in the new year the swelling should have settled down and we'll know.
I'll keep you all updated and I'll keep the blog posts coming. I have a few ideas about the things I have been doing post op and who knows I could make another vlog to discuss other things related to Bertie.
Thanks for reading,
Lots of love
Xx Gem
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