Tuesday, 2 August 2016

All The Time and No Time At All

Hey BB'ers,

Long time no blog...again...I can only apologise- life has been pretty busy and work seems to pretty much take up a lot of that time (more on the work bit in another blog) but I need to keep blogging as much as I can because I love it so much! So the Holidays came and went, Happy New Year and all that jazz 😃 I hope you all had a peaceful holiday season.

I totally didn't blog after my last entry and for that I apologise as I may have had people wondering what was happening but just to reassure you the last results I had in August 2016 were stable and the tumour seems to still be the same as post surgery however as I've mentioned before, they call it 'stable changes' because the old blighter gap in my head shifts a bit but that doesn't indicate that it's tumour, as my Neuro Oncologist says, it's just the way it is! After the results we had our usual ritual of dinner and drinks as getting up to London is a bit of a faff but totally worth it. All of this stuff really does make you appreciate the little things in life even more...here's a picture of me after the appointment with Mum and Carl and also my bestie Jo and her lovely hubs Paul who came to meet us...thank you guys xx




I am still attending the Care Oncology Clinic and there was a great piece in Tuesday's Telegraph about one of their patients and the continued fight to get well tolerated medicines in place for cancer patients in conjunction with conventional treatments. If you fancy a read please check that out here: http://www.telegraph.co.uk/wellbeing/health-advice/crowdfunding-cure-cancer/

As I know it's no miracle cure but if what I am taking is helping me stay more stable for longer or dare I say it as they called it last time, in "tumour remission" then that is ok with me.

So the title of this post is the blank space that is waiting for the latest scan results. It does feel like all the time and no time at all but there we are. I do have scanxiety and whilst I was out today an ambulance went past and it made me think about the journeys we had back and forth during diagnosis stage. I know there is a bit of me that still feels that trauma, but it's ok, we deal with that and we fight on. My results are in the next few weeks and I will be certain to update again once I have had those...I haven't forgotten about writing a post on life and managing work etc in a post diagnosis world but I think this will take me a bit more time to put together.

I have followed Kris Hallenga on Twitter for a while and she made a brilliant documentary on BBC3. Kris is an absolute inspiration- she has a wicked blog and I love her Twitter posts. I know that we are going through completely different things, but her approach to life and kick arse attitude towards cancer really makes me smile at times. I saw a post on her blog here and I am totally borrowing this for mine today as it really does sum up the waiting bits in between so well: 
Original credit from Kris's blog: http://howtoglitteraturd.com

Lots of love,

Gem xx